To raise valuable awareness and funds towards researching an all important cure.
Is a little known skin condition that causes the skin to blister and shear at the slightest touch.
Is the amount The Phoebe Research Fund has contributed so far towards essential research.
Actor & Artist Steve Huison hosts an Art Workshop in aid of Phoebe Research raising £350
Your support and contributions will enable us to meet our goals and improve Epidermolysis Bullosa a life limiting skin condition.